A Passion for Living

A Passion for Living

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Our lives are precious. Never more so than for 19-year-old Alexander Stobbs who has been a cystic fibrosis sufferer from birth. For him, each day could be his last. But as he says in the BAFTA-nominated documentary - A Boy Called Alex - 'you can't do stuff if you're afraid'.A truly inspiring story of a young musician determined to live his dreams, Alex takes us on his journey to survive a daily round of drugs and treatments as he also prepares for his yearning ambition to conduct Bach's three-hour-long St Matthew Passion. Everything we take for granted is a struggle for Alex - eating, sleeping, even breathing. His determination to live life to the full, constantly striving for perfection in his musical performance, is set against the exhausting every day rigours of medication and treatment simply to keep him alive. Yet he has already achieved some extraordinary goals. An Eton scholar, he has now won a further music scholarship to King's College, Cambridge. Introduced here by his mother Suzanne, Alex's account of living with no certainty about his future is a spur to all of us to make every day count.Ita#39;s not that I resent them a€“ though sometimes I do a€“ but more that I just dona#39;t bother to give them space in my thoughts. ... Anyway, behind the scenes, herea#39;s what the medical side involves: As soon as I wake up a€“ which can take me a while a€“ I detach the feed ... The portacath was put in after that and made things a lot easier.

Title:A Passion for Living
Author:Alexander Stobbs
Publisher:Hachette UK - 2009-09-17


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